Rare diseases: the year of hope for Aléandro, 9 years old, who will finally undergo a bone marrow transplant

Rare diseases: the year of hope for Aléandro, 9 years old, who will finally undergo a bone marrow transplant


“This transplant will change Aléandro’s life, he’s had enough of it,” assures his father, Christopher Pereira. On January 24, this 9-year-old child will finally benefit from a bone marrow transplant. This complex operation, carried out at the Nantes University Hospital, should disrupt the daily life of Aléandro and his family based in Rivedoux, on the Ile de Ré (Charente-Maritime).

The boy suffers from Blackfan-Diamond anemia (ABD). Diagnosed at the age of 3 months, this rare genetic disease prevents his bone marrow from making red blood cells. Until then, Aléandro had to undergo monthly blood transfusions and multiple hospital stays, sometimes in a sterile room. Good news: a donor of German nationality has been identified by the medical profession. Challenged 2 years ago, his file was finally approved.

“We couldn’t find anything better and more compatible for Aléandro. He prepared some drawings for him and we will pass him a word,” reveals Christopher Pereira. Bone marrow transplant requires a particularly cumbersome protocol. Aléandro will leave in the next few days for Nantes with his mother, Valérie Pereira.

Return to CM2 at the start of the next school year

“He will have to undergo intensive chemotherapy to destroy his bone marrow before its replacement with that of the donor. Aléandro keeps his spirits up. We must not flinch,” explains his father. Three to six months of care and monitoring will follow after the operation. “Aléandro will benefit from lessons at the hospital and will return to school, in CM2, at the start of the next school year,” specifies Christopher Pereira who hopes for a complete and rapid remission of this illness.



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